RESOURCE DIRECTORY: Advocacy, Associations and Foundations

• Child Advocacy Center of Oswego County (CAC)

163 S. First St., Fulton, NY 13069 • 315-592-4453

https://oswegocac.org

A 501(c)(3) nonprofit, the Child Advocacy Center of Oswego County is a safe, welcoming location where Oswego County’s multi-disciplinary team collaborates to support children affected by abuse and their families. Its mission is to offer a child-friendly environment that ensures a response to child sexual abuse, physical abuse, and trauma, while fostering healing for victims. In the past, abused children were moved between agencies and repeatedly asked to recount painful experiences. By uniting services in one non-threatening setting, the agency reduces repeated interviews and ease the emotional stress of disclosure. The CAC also provides outreach and education to help prevent child abuse in our community.

• The ALS Association, Upstate New York Chapter

135 Old Cove Road, Suite 213, Liverpool, NY 13090 • 315-413-0121

www.als.org/support/states/new-york

The Upstate New York Chapter supports people living with ALS and their loved ones in the community through services and education. Its mission is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

• Alzheimer’s Association Central New York Chapter

5015 Campuswood Drive, Suite 102, East Syracuse, NY 13057 • 315-472-4201 (Syracuse) • 24-Hr. Helpline: 1-800-272-3900

cny-info@alz.org • www.alz.org/cny

Serving the cities of Binghamton, Ithaca, Syracuse, Utica and Watertown and their surrounding counties, the Alzheimer’s Association, Central New York Chapter, provides education and support to all those facing Alzheimer’s and other dementias, including those living with the disease, caregivers, health care professionals and families. The Alzheimer’s Association leads the way to end Alzheimer’s and all other dementia by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.

• American Heart Association

https://easternstates.heart.org

The organization raises money for cardiovascular research and programs, in order to reduce death and disability from heart disease and stroke. It also publishes guidelines on cardiovascular disease and prevention, standards on basic life support, advanced cardiac life support (ACLS), and pediatric advanced life support (PALS). Programs include awareness campaigns; Go Red for Women; and Check, Change, Control, a self-monitoring hypertension management program.

• Blood Cancer United

1-800-955-4572

www.bloodcancerunited.org

The organization — formerly Leukemia and Lymphoma Society — is committed to blood cancer research, support and advocacy. Visit the website for links to email and/or live chat.

• Charcot-Marie-Tooth Association (CMTA)

cmtsyracuse@gmail.com • www.cmtausa.org

A primary research foundation and advocacy group for those suffering from Charcot-Marie-Tooth disease. Due to the degradation of their nerves, people with CMT suffer lifelong progressive muscle weakness and atrophy of the arms and legs, progressive sensory loss, and CMT can affect other parts of the body. This leads to problems with balance, walking, hand use, and more.

• Central New York Community Foundation

431 E. Fayette St., Suite 100, Syracuse, NY 13202 • 315-422-9538

info@cnycf.orgwww.cnycf.org

Established in 1927, the Central New York Community Foundation encourages local philanthropy by supporting the growth of permanent charitable endowments for the betterment of the region. The Community Foundation serves as the steward of charitable legacies for individuals, families and businesses and serves as a civic leader, convener and sponsor of special initiatives designed to strengthen local nonprofits and address the region’s most pressing challenges.

• Cystic Fibrosis Foundation – Central New York Chapter

200 Gateway Park Drive, Building C, Syracuse, NY 13212 • 315-463-7965

central-ny@cff.org • www.cff.org/chapters/central-new-york-chapter

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

• Empire State Lyme Disease Association, Inc.

EmpireStateLyme@aol.com • www.empirestatelymediseaseassociation.org

The association’s mission is patient advocacy and public education to prevent tick-borne diseases from becoming serious and/or chronic. The website also has a link with information on support group meetings.

• Lupus and Allied Diseases Association

P.O. Box 170, Verona, NY 13478 • 315-829-4272 • 1-866-2-LUPUS-4

info@LADAinc.org • www.ladainc.org

The Lupus and Allied Diseases Association provides information and support to the extended lupus community, including people with lupus, care partners and families. It raises awareness and increases understanding among providers, lawmakers and the public funds research that will lead to earlier diagnosis, more treatment options and ultimately a cure.

• National Kidney Foundation serving Upstate, Central and Western New York

1344 University Ave., Suite 270, Rochester, NY 14607 • 585-598-3963

infoupny@kidney.org • www.kidney.org/UpstateNewYork

The National Kidney Foundation’s mission is to fight to save lives by eliminating preventable kidney disease, accelerating innovation for the dignity of the patient experience, and dismantling structural inequities in kidney care, dialysis, and transplantation. Please refer to www.kidney.org/UpstateNewYork for up-to-date information on programs and events, support resources, toll-free help lines and online communities.